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I · like · to · quote · people
Everybody says something memorable, at least once
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Merry christmas and a happy new year.
My Christmas was pretty good, the family was okay except for at the end when Granpda gathered us all around because he 'had something to tell us.'
"I have a problem." He says
Silence
"I'm hoping my kids can help me solve it."
More silence
"I have this finiancial problem."
Slightly relieved silence, but still anxious
"The Prime Minister gave us $2000 and we don't know how to spend it."
GRANDPA!
Still, hard to stay mad at a guy who gives $500 to each of his kids and $50 to the grandkids.
Then christmas night I had more friends then expected turn up to my house for drinks, which encouraged one more to pop in as well. :D. I was so happy that so many people came around that night.
New years was a house party at a friends'. Friends and frivolity abounded, I left at about 4 am and they were still going strong. There will probably be a cut together video of it by tomorrow, if Pickle wasn't too tired today.
BTW: I am doing fine, so quit asking 'and how are you?' like the funeral is next week everyone. |
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Well I just finished two weeks work experiance at a cafe in glenelg. Zest Cafe in sussex st, go there, you won't regret it. So the boss there said that if he didn't already have a full roster getting fuller he would have offered me a job. :D. He also said he would be a reference for me so I'm pretty stoked about that considering I had zero work refrences previously. Already I've had another interview but that was a bust because there was a miscommunication between my people and him and he thought I had my gaming badge when I'd merely done the educational component. Bummer. He said he might give me a call anyway but I won't hold my breath. My sister bought a house, moving out in Jan. Just be me and mother then.
GOD I NEED A JOB SO I CAN GET OUT OF HERE!
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Just saw a doco on SBS. http://player.sbs.com.au/programs#/programs_08/fullepisodes/latestepisodes/playlist/My-Boyfriend-The-Sex-Tourist-Ep-1/Was about a resort where the clientele (men) book women along with their rooms, not just for sex but as 'girlfriends'. Girls to wait on them, show them affection, and follow them around the tourist scene and even guide them (haggle for them at markets ecetera). The girls were okay. None of them liked their work but most of them were resigned to it for the time being. They were also mostly very good at it. The one who was not resigned to it was fired. But the clients. The men. They made me ashamed to be male, the way they pick and then reject these girls. The way they treat them while they're with them...*retch*. There was even this one guy that the director made look like he might be okay. Still a sleeze, but respectful and even loyal to his chosen girl. At the end they interviewed him.
*PARAPHRASE*
'How did you like your stay?'
'It was okay, the girl I picked was sweet she looked after me well [he'd been sick], but I'm never going to see her again, and that's okay.'
AND THEN:
'Do you want the girls to think about you after you've gone?'
'I've never even thought about it'
'I'VE NEVER EVEN THOUGHT ABOUT IT'!!!
That's it; I'm becoming a lesbian.
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Apparently not. Well at least not being offered work experiance at least. For instance I was walking down Sussex St in Glenelg today. Happened to run into my vocational rehab handler, who happened to be near Zest cafe, and lo and behold I have work experiance! (In actual fact we had an appointment, but my story is much more interesting than the truth, yes?)
I am doing floor work, I start next Monday and the placement goes for two weeks at the end of which I will have a current and hopefully good work-based reference. |
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Not Anymore it don't!
I am no longer required to go into hospital for weekly 3 hour sessions of I.V. treatment. Best of all this means that the pills I had to take because the treatment was so toxic are off the menu.
YAY. Those were the worst. Honestly, I understand the idea that mediciene should taste bad so you want to get better but this shit was something else. If the devil made a medication, he made probenecid.
So the week after I had my last Tuesday treatment I went in one more time to thank the staff there. I know that it is part of their job to be nice to me, but considering its me, I must have made their job harder. So to thank them properly I made a copy of every one of my (and aff's) DVDs that I'd brought in and watched on their portable player while having treatment. The sheer number of movies that were there made me depressed and happy that it was finished all over again.
Still on the pills but that is coming down and I'm only going in every two months for doctors appointments which are also getting further apart. Most of my treatment is done over the phone. |
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You Are: 50% Dog, 50% Cat
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You are a nice blend of cat and dog.
You're playful but not too needy. And you're friendly but careful.
And while you have your moody moments, you're too happy to stay upset for long.
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Ana Ivanovic!
'This is a dream come true.'She is also, as of monday, the world's no.1 women's tennis player. This is just the beginning people. |
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You'll get it when you click it.
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Alexander Lee Rose
Born April 27th 2008 of
Fiona Cornish and
Brendan Rose
Welcome to the world little man.
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Bickfords Iced Coffee Essence now comes in an easy to open plastic bottle! YA-FUCKING-HOO! Spread the word people! I can now open my iced coffee essence without running it under hot water first! Joy is me!
JOY IS ME! |
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My vampyre comes tomorrow. Other than that I have nothing to do. Except cook mine and mother's tea in the evening which will consists of throwing some chicken things from Lenards in the oven, making some garlic mash, and de=thawing some frozen vegies. |
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FUCK FUCK FUCK FUCK FUCK FUCK FUCK FUCK FUCK FUCK FUCK FUCK FUCK FUCK FUCK FUCK FUCK FUCK.
FUCK.
I just found out that i'm going into hospital all day tomorrow. Why? Because my stupid BK Virus which I've had for weeks without any symptoms has decided to go systemic (into my blood stream). I'm still completely asymptomatic but they want to jump on top of it now that its systemic.
This means I have be in by 9 so I can take a pill then wait three hours until they can start the treatment, which is I.V. (blech), and takes another three hours.
By the way did I mention
FUCK!
I hate my body. Inside and out.
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*sigh*
I finally have my network set up and there's no one online to talk to.
I need to get used to typing on my natural keyboard again. I've been using a shitty logitech cordless for so long that my fingers are all shitified and keep looking for keys in the wrong places.
*sigh again*
What happened to all the nocturnal people? I need friends in different timezones.
Fuck it. I'm going to bed. |
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So i got out of hospital on the 31st December but I was still so unwell that I wasn't even awake at midnight for the new year.
I spent most of January wathcing the tennis. Mother bought a 40" digital TV so I watched most of it on that. That was good. I was so happy that Ana Ivanovic made it to the Aus open final and naturally disappointed when she lost but it is only her second grand slam final and I'm sure she will win one soon. Would have been nice if it was here is all. And Federer lost in the semis! I was devastated! I guess I won't see him win the Grand Slam this year either. *sigh* Maybe next year.
Mother got a free PS3 with the TV but it hasn't arrived yet so I've hooked up my laptop to the TV to watch DVDs. Since it was sitting there anyway I figured I may as well buy an external hard drive and load it up with media to fill in my spare time.
I've caught up with a few friends in and out of sitting on my arse. Fiona is looking healthy and big, I'm so happy for her and Brendan. April will be a big month for people in my life. One sister is having a birthday, one is getting married, and two of my oldest friends are having their first child. A little mini Brendan *wipes tear*.
Well that pretty much brings everything up to date. I'll try to post more regularly then once every three months. I'll try to have more interesting stuff to talk about as well.
If anyone still reads this please let me know. If you don't have a logon try to let me know who you are some otherway. Be cryptic about it and I'll try to guess who you are; what a game! (God I need to get a life) |
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Okay, so its been a few months since I posted. To my legions of fans, I apologise. But to be fair I was in hospital (without net access) for a month at the end of last year. So when the blogging mood came upon me in That Place, as it is more wont to do in There, I wrote my thoughts down on a .txt document and dated it for posting at a later date.
As things turned out, that later date is today. 19/12/2007
So I've been in hospital for about three weeks now and they finally have a diagnosis for me. A possible diagnosis. My doctor is pretty sure I have Graft vs Host Disease in my lungs but none of the tests including an endoscopy (down my mouth to my stomach), a bronchoscopy (up my nose and into my lung), a lung function test, and a lung biopsy have definatly confirmed that I have GVH. But since that is their best guess they want to put me back on immunosuppression, including steroids.
So my options are to do nothing which could result in permanent damage to my lungs, an open operation to take a piece of my lung out for testing, a liver biopsy, or just go with their 'best guess' diagnosis and back on the steroids. I really do not want to go back on steroids again and I have opted for a liver biopsy. If this ends up as inconclusive as the other tests then I will probably go for the lung operation because I refuse to go back on steroids without definate proof that I need to. 30/12/2007
So I had the liver biopsy which was a horrible experiance. They did it only under local anaesthetic and they can't numb the organ itself so everytime they go into the liver I could feel it: and it hurt! And the worst part was that they didn't tell you when they were going in, which they did more than once, and lying there waiting for the rather brief momment of agony is much worse than they needle itself. After its all over the nurse tells me that I could have asked for vallium to relax me before hand. Thanks a fucking lot.
So the liver biopsy results came back and it showed that I have GVH in my liver so that needs to be treated with steroids. Since they are pretty certain that the GVH is also infecting my lung the steroids should take care of that too. The doctors held off begining the steroids until after christmas, which I went home for after catching up with Becky on christmas eve.
Christmas was ok,I was fairly ill for most of the day but I battled through. I got a Nintendo DS which I am quite happy about.
So since I came back to hospital on christmas night I have started on the steroid tretment and I must confess that I am feeling better. They want to send me home tommorrow but I feel that is a bit soon. There is nothing I can do if they kick me out but...
I really shouldn't complain like I am, considering that someone on the ward died today. I didn't know them or anything I just heard about it on the grapevine but it goes to show that despite all my complications I am a lot luckier than some people with the same or similar problems to me.
I know that everytime I come out of Hospital I say I will see you all soon but this time I'm going to be realistic about it and say that it's still up to you guys to come and see me even while I'm home for a while. I just don't have the energy for going out yet.
It's a long road baby. |
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Well not exactly. Friday before last I had a bone marrow biopsy and yesterday (Friday) I got the preliminary results. No leukemia! My bone marrow is still 'thin' which means there isn't much there so I still need transfusions but I'm down to once every couple of weeks which is good. I've had so many red blood cell transfusions over the last few months that my iron levels are higher than they should be. IN a few months I may be pt on a medication trial to try and lower that. I've switched doctors again, I now have the same doctor I had back in Flinders! I am still on Immuno-suppression so I can't go out into large crowds or hang around sick people but I've been cleared to go to Marion at non-busy times so that's good. Can't go to the movies yet. Well that's about all for now, any questions please ask away. |
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So I have developed and extremely itchy rash, the type that scratching only makes it feel better as long as I keep doing it you know? Of course if I start scratching I can't stop until I start bleeding then I MAKE myself stop. It really is driving me crazy and when I rang the doctor he said it would wait until tomorrow when I go into hospital for my weekly visit anyway. So excuse me for a second; *screams in agony* Okay, that did nothing.
More bad news, sad bad news. Robert Jordan, one of the best and best-selling fantasy authors of contemporary times has died recently at age 58. He was author of the massive fantasy saga the 'Wheel of Time' and what's worse is he was still writing it when he died.
Now I don't say that just for selfish reasons.
This was a massive fantasy epic spanning eleven large novels and not yet near finished. I personally would hate to leave something like that unfinished, especially because of something as unfair as an untimely death. So all who love fantasy, even if you haven't read him should mourn both the death of the man and the series because with his death dies all his characters along with their loves and lives. |
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That's right folks; Devans is mobile. Look out pedestrians I'm back on the road!. What a great feeling it is. Excuse me, I might go for a drive right now. |
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Sorry that I haven't been posting much lately guys, its just that with being out of hospital there isn't much to report on about hanging around at home. Mother is having some painting done outside and the painter said, totally out of the blue, that he would bring around pirates 3 and die hard, how nice of him is that?
So health wise I'm generally kicking along ok. I'm still in pain when I 'go' and I get occasional belly pain as well so that's not much fun. My steroids are being weened down again so that is good news. I'll be going from 5mg to 3mg in the space of a week. My last urine sample also came back negative for BK virus so hopefully my treatment for that will end soon as well. Otherwise I'm still pretty dead to the world in the morning, when I was forced up early on friday I ended up puking out my sisters car window, right on to north terrace!
I'm taking it pretty easy today and Becky promised she'd see me tomorrow so I'm kinda happy about that.
Hopefully I will have my car running soon, that'll give me a lot more freedom to see you guys and I won't have to rely on you getting your lazy full time working butts over here. |
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